Waiting for HSE decision on Skyclarys has been awful — but now I can celebrate Irish Examiner 19:09 Tue, 25 Aug Article paywall
Cork father welcomes ‘life-changing’ HSE approval of Skyclarys for Friedreich’s ataxia Echo Live 14:13 Tue, 25 Aug
Friedreich’s ataxia: What is it, and how can Skyclarys help patients? Irish Examiner 13:47 Tue, 25 Aug Article paywall
'Life-changing day' - HSE approves Skyclarys for Friedreich's Ataxia patients Cork Beo 12:57 Tue, 25 Aug
Taoiseach welcomes HSE decision to approve Skyclarys Government of Ireland (Press Release) 12:28 Tue, 25 Aug
Statement from the Minister for Health on HSE approval of reimbursement of Skyclarys for patients with Friedreich’s Ataxia Government of Ireland (Press Release) 12:28 Tue, 25 Aug
HSE approves Skyclarys funding for Friedreich’s ataxia patients after campaign Irish Examiner 12:26 Tue, 25 Aug Article paywall
Decision due on Skyclarys funding as Biogen reportedly makes lower price offer Irish Examiner 11:25 Tue, 25 Aug Article paywall
HSE set to decide whether €280,000-a-year Skyclarys drug will be funded Irish Examiner 08:11 Tue, 25 Aug Article paywall
Talks on Skyclarys have reached a critical point – David Cullinane TD Sinn Féin (Press Release) 18:20 Mon, 24 Aug
Pressure mounts as HSE to decide tomorrow on reimbursement of €280k-a-year Skyclarys drug TheJournal.ie 16:09 Mon, 24 Aug
HSE urged to continue talks over Skyclarys treatment for Friedreich's ataxia patients Irish Examiner 15:35 Mon, 24 Aug Article paywall
Dublin protest demands HSE funding for Skyclarys to treat Friedreich's Ataxia Dublin Live 16:01 Sun, 23 Aug
Campaigners hold protest in Dublin calling for life-changing Skyclarys access Irish Mirror 15:43 Sun, 23 Aug Article paywall
HSE to decide on €280,000-a-year Skyclarys drug for Friedreich’s ataxia Irish Examiner 15:13 Sat, 22 Aug Article paywall
'A problematic child': Ireland's rare drugs record casts doubt over Skyclarys decision Irish Examiner 06:43 Sat, 22 Aug Article paywall
Skyclarys maker disputes figures cited in HSE decision not to fund the drug Irish Examiner 19:00 Tue, 18 Aug Article paywall
Patients deserve answers and a choice on Skyclarys – David Cullinane TD Sinn Féin (Press Release) 15:22 Tue, 18 Aug
TDs call on pharma company to work with HSE to give access to life-changing drug Skyclarys TheJournal.ie 17:26 Mon, 17 Aug
Further pressure on Taoiseach to intervene on provision of Skyclarys Irish Examiner 18:38 Fri, 14 Aug Article paywall
Taoiseach urged to act after HSE group recommends against funding Skyclarys for rare disease Irish Examiner 14:55 Fri, 14 Aug Article paywall
Cork TDs demand approval for life-changing drug Skyclarys after HSE decision Cork Beo 11:32 Fri, 14 Aug
Skyclarys: Senior FF members urge Government to overrule HSE on life-saving drug Irish Examiner 20:44 Thu, 13 Aug Article paywall
TDs call on HSE Drugs Group to reveal why they decided not to fund Skyclarys Irish Examiner 19:08 Wed, 12 Aug Article paywall
Bereaved Cork dad hopes Government will step in following HSE Drugs Group recommendation not to fund Skyclarys Irish Examiner 09:12 Wed, 12 Aug Article paywall
