Restoring the silenced Friedreich’s ataxia gene through unconventional means Newswise (Press Release) 16:18 Wed, 05 Aug
Woman, 28, with rare disease Friedreich's ataxia sues HSE over access to drug Irish Examiner 20:25 Tue, 28 Jul Article paywall
Calls for action on early access to Friedreich's Ataxia treatment UCL Hospitals Biomedical Research Centre (Press Release) 09:52 Fri, 24 Jul
Cellares and Papillon Therapeutics Partner to Automate Manufacturing of PPL-001 for Patients With Friedreich’s Ataxia Business Wire (Press Release) 14:02 Tue, 21 Jul
Drug to treat Friedreich’s ataxia must be approved ‘urgently’, Dáil hears The Irish Times 19:58 Thu, 16 Jul Article paywall
'Mixed views on the science' behind drug to treat Friedreich’s ataxia, Tánaiste says Irish Examiner 15:46 Thu, 16 Jul Article paywall
Bring pace and urgency: Mary Lou McDonald calls on Tánaiste to immediately intervene on behalf of those living with Friedreich’s Ataxia Sinn Féin (Press Release) 15:30 Thu, 16 Jul
Taoiseach doesn't commit to timeline for approval of drug to treat Friedreich's ataxia TheJournal.ie 16:59 Wed, 15 Jul
Health Minister must ensure urgent decision on Skyclarys access for people with Friedreich Ataxia – David Cullinane TD Sinn Féin (Press Release) 15:44 Wed, 15 Jul
HSE urged to ‘think past price’ in protest over drug for Friedreich’s Ataxia BreakingNews.ie 17:27 Tue, 14 Jul
